Showing posts with label holidays. Show all posts
Showing posts with label holidays. Show all posts

Friday, January 01, 2010

Seven Quick Takes Friday Vol. XIX--The New Year's Edition



I.
Happy 2010 everyone! I hope you have a blessed year full of love and fun with family and friends.

II.
New Year's has never been a big holiday for me or my family. I had a boyfriend in college who loved it. It might have been his favorite holiday. Me? Not so much.

III.
That being said, I have been to NYC on New Year's Eve, which is the pinnacle of NYE activities in the U.S. It was crazy, but fun, and I'm glad I did it. It was during my senior year of college, where seven of us crammed into an NYC hotel room for two nights. That was really my first time in the city for longer than one night (I had been, once, in high school, to visit my Aunt who lived there), and it was magical. Cold, but magical. Since it was 2003, the rebuilding of ground zero had not yet begun, so my friends and I went to see the site on New Year's Day of 2004. It was a solemn way to begin the new year, but also appropriate that we went and remembered that day and the brave men and women who died.

IV.
I don't usually make new year's resolutions, either; I'm never able to keep them, and, when I did make them, they were usually something like, "stop biting my nails." Which, as anyone who knows me knows, hasn't happened in the 20+ years I've been making that resolution.  That doesn't mean I don't believe in self-improvement; I've just never been good at New Year's resolutions.

V.
That said--I do have some ideas this year. Pay off the rest of my credit cards, finish my MA pre-reqs (or at least 4 of the 6, if I don't get to all 6), and get in shape. My best friend is getting married in August, so that's definite motivation to look my best at the wedding. I have eight months and change to do something about it, so I intend to.

VI.
And there are some big things to look forward to this year, namely, my five year anniversary.
Five years! Can you believe it? I sure can't. In July, we will hit that milestone.  FIVE YEARS! (can you tell I'm super excited?)

VII.
My Christmas vacation ends on Monday, but I still have THREE MORE DAYS. It's been a great Christmas season. Enjoy the rest of it while you can!

Saturday, July 04, 2009

Sunday, May 03, 2009

Emology

(From Jane) 

1) What is your salad dressing of choice? Italian

2) What is your favorite sit-down restaurant? Bon Vie! 

3) What food could you eat for 2 weeks straight and not get sick of? PIZZA

4) What are your pizza toppings of choice? pineapple, sausage, pepperoni, cheese....

5) What do you like to put on your toast? peanut butter

6) How many televisions are in your house? 1

7) What color cell phone do you have? red

8) Are you right-handed or left-handed? right

9) Have you ever had anything removed from your body? major organs :) but other than that, no. I still have my tonsils. Go figure. 

10) What is the last heavy item you lifted? all my computer stuff, up the stairs into my apartment. 

11) Have you ever been knocked unconscious? Knocked? No. Unconscious due to drugs/medical conditions? Yes

12) If it were possible, would you want to know the day you were going to die? No. Absolutely not. 

13) If you could change your name, what would you change it to? I like it. No changes. 

14) Would you drink an entire bottle of hot sauce for $1000? Sure. As long as I didn't have to keep it down. (yeah, I stole this from Jane. )

15) How many pairs of flip flops do you own? Three. 

16) What’s your goal for the year? be happy

17) Last person you talked to on the phone? I don't really talk on the phone, but it was probably mom. 

18) Last person you hugged? My grandpa

19) Favorite Season? summer/end of summer into fall

20) Favorite Holiday? Christmas!!!

21) Favorite day of the week? Saturday

22) Favorite Month? August/September

23) First place you went this morning? church in PA

24) What's the last movie you saw? The Hiding Place 

25) Do you smile often? Yup

26) Do you always answer your phone? My favorite button ever is iDivert. (OK, stole this again too, but I love it!)

27) It's four in the morning and you get a text message? I'm not even aware it happened. 

28) If you could change your eye color what would it be? I wouldn't

29) What flavor drink do you get at Sonic? Anything. Sonic's drinks are the best. 

30) Have you ever had a pet fish? yes. Twice. Both times they died. 

31) Favorite Christmas song? O Holy Night

32) What's on your wish list for your birthday? Well I just had one....I got books/DVDs/ a fun Magic Kingdom mug. :) 

33) Can you do push ups? Um...probably a couple. I can do plank pose. :) 

34) Can you do pull ups? Ha. Ha. NO. 

35) Does the future make you more nervous or excited? very very excited

36) Do you have any saved texts? Yup

37) Ever been in a car wreck? a couple

38) Do you have an accent? apparently, some people thing I do. I'm from Ohio, we're known for being "accentless"

39) What is the last song to make you cry? "Do What You Have To Do"  (I'm not counting songs I sang whilst crying onstage. That's called acting folks)

40) Plans tonight? unpack, read Parish Council materials, clean. Yes, I really have to clean. 

41) Have you ever felt like you hit rock bottom? Yup. 

42) Name 3 things you bought yesterday: Candy for my cousins at my other cousin's school musical. :) 

43) Have you ever been given roses? Heck yes. I had one boyfriend who was particularly good at that. 

44) Current hate right now? That I have to vacuum. I really hate vacuuming. 

45) Met someone who changed your life?  Yup. 

46) How did you bring in the New Year? I stayed home.  Yes, I am boring, but I'm not a big New Year's Eve Girl. I spent it once in NYC, and that was plenty. 

47) What song represents you? There's not one. There's a million. 

48) Name three people who might complete this? Not sure. 

49) What were you doing 12 AM last night? sleeping at Grandma's house in the bottom bunk. Good times. 

50) What was the first thing you thought of when you woke up? It's morning ALREADY? 

Sunday, November 30, 2008

Saturday, November 29, 2008

The twenty-five year Christmas Gift

Most Christmas gifts have a few month lifespan, especially toys. 
The Barbie dollhouse? Don't remember what happened to that.
Cinderella's castle? Ditto. 
The Cinderella princess tent? We probably destroyed that one. 

But there was one Christmas present that endured for 25 years. 
The Care Bear Kitchen set. 

I don't really remember this, except through pictures, but apparently I really wanted this toy. It was like my version of "Tickle Me, Elmo" or whatever.  I was probably about 4 and I wanted this toy with some sort of greed, let me tell you. Now, given that in my four years of Santa Experience, he had never let me down, I was pretty sure I would find it in our family room come Christmas. 

So that morning I head downstairs and being ripping into the presents. I figure that this toy would have to be assembled, but I didn't really think about that. As I was doing my thing my parents were helping Bryan with his Christmas toys (he was only about 1 or so). 

As the packages thinned, it dawned on me that the kitchen set was not there. As in, it hadn't appeared. I hadn't gotten it. The polaroid of this moment shows me in my Strawberry Shortcake pajamas, looking very, very sad. Like my best friend had died sad. 

That was until my dad opened the doors to the basement. 

Now our basement in this house was small and oddly shaped. The stairs dead-ended into a wall and you had to turn left for any sort of open space. So my dad led me down because, you know, these are dark stairs and I'm not going down them alone. 

And there, lo and behold, on the dark red carpet, is the kitchen set.  A "fridge" with the Care Bears painted on the doors and a stove, with the bears painted on the backsplash. Of course there were also various food and kitchen products (non-care bear). W

I was in heaven. I loved this thing. The second polaroid shows me in mid-jump as I discovered that Santa had not abandoned me after all. 

Well this set lasted many, many moons. The stove part met its death in the early 1990s, but the fridge (which was really a few shelves covered by the door) lasted a very, very long time. The door was removed and it became a set of book shelves.  It has been in our basement since we moved to the house, in May of 1990. 

When I came over to the house this year, on Thanksgiving, I noticed it had reached Its End and was piled at the curb, next to the Trash Can. 

So many Christmas toys that you are dying to have disappear without a trace. But this kitchen set endured and gave us many years of faithful service. That can't be said for a lot of toys. 

I salute the Care Bear Kitchen Set. 


Black Friday: The Siblings and a Popcorn

This year, my family and I didn't go to Pittsburgh, as we usually do, but stayed at our house, which led to GLorious Honey Baked Turkey and other wonderful foodie things. Bryan ran Columbus' Turkey Trot on Thursday morning (came in 4th; his trophy adorned the Thanksgiving table!), and we watched My Cousin Vinny while we waited for the meal, since Mel had never seen it (which none of us could believe). 

We ate around 5:00 (our normal dinner time) and after that we played several games, including my Trivial Pursuit Book Lover's Edition (which, of course, I won), followed by a viewing of Home  Alone (Yeah, it was like Joe Pesci day at our house). We hadn't seen that movie in awhile and I forgot how much I liked it (and the McAllister house. Wow.).

Friday found us watching the first half of the "backyard brawl" between Pitt and WSU (which Pitt won. Thank God.). At halftime, Bryan, Mel and I piled into Lilo and headed up to Easton, where we did some shopping: Peppermint Hot Chocolate and Williams-Sonoma (just like Sarah P. had on her counter during a FOX interview!), a gift certificate and cashmere at Ann Taylor; Mel bought jeans at Forever 21, and both Bryan and Mel browsed American Eagle.  Easton is a great place to celebrate Christmas; Santa was in full swing, the massive tree was on the town green, carriage rides were being given, and some people were selling kettle corn! 

Dinner was at California Pizza Kitchen, where Mel and I shared a Margharita pizza and Bryan had the jambalaya (yes, good stuff). It was a lot of fun being out with the two of them, because we almost never get to do that anymore. 

I would have to say the highlight of the day was seeing The Boy In The Striped Pajamas. OK, yes, for most people a Holocaust movie would not scream "Happy Holidays!", but we all wanted to see it and it was showing at Easton, and not our local theater, so we went. Me being me, I knew how it ended, but my brother and sister didn't. Hence, they cried at the ending (well at least Mel did, I didn't know about Bryan). 

I won't talk plot except to say that Bruno (Asa Butterfield) is an 8 year old boy whose father (David Thewlis, probably best know for the Harry Potter movies, where he plays Lupin) is a officer in the Nazi army. The family is transfered from their Berlin home to the commandant's home that oversees a "work camp" (in reality, Auschwitz, but no one, except Father, knows that). Bruno hates the house--his sister has become involved in Nazi Youth to impress a young offier on their father's staff; there are no children his age, and his parents are always busy. One day, he makes he way through the forest behind the house to the "farm" where he meets "The boy in the striped pajamas"--a boy his age who works on the "farm". He soon becomes Bruno's only friend.  The performances are remarkable, as is James Horner's music (finally a score without any Titanic themes in it!).  If you've got kids older than say, 12, they should be OK, especially if they have any sort of Holocaust exposure. I found out after the movie that neither of my siblings have seen Schindler's List, which made me wonder how that had happened. We may need to watch it at some point. 

So that was the beginning of my Thanksgiving weekend. How did you spend yours? 


Thursday, November 27, 2008

Happy thanksgiving!

This year I am grateful for my friends, my family (and all the new babies that my friends and family have had!) and for all of YOU.
Have a wonderful Thanksgiving!
(Oh, if you want my favorite Thanksgiving article, read this. LOL funny.) 

Now Thank We All Our God
With Heart and Hands and Voices
Whom wondrous things have done
In whom this world rejoices
Whom from our mothers' arms
Hast blest us on our way
With countless gifts of love
That still is ours today. 

Give thanks to the Lord, for He is Good! His love is everlasting. 



Tuesday, November 11, 2008

Veterans' Day

I don't believe anyone in my immediate family is a veteran. 
My Aunt Gerri was a Navy nurse, and my grandpa (my mom's dad) was sent to training for WWII, but he didn't get sent into combat. 
My dad was close to being drafted into Vietnam (or at least that's how I remember it, when I asked him). 

So my experiences with veterans have been through my friends, and, in one case, my cousin's husband. 

I am sure I am leaving some out, but I would like to thank: Steve, Brad, Kenny, Rob, and Dustin (who died in Iraq a few years ago), as well as all the other men and women of our armed forces who have given so much for our nation, including their lives. 

I remember the first time it dawned on me that my friends could die in war. It was in 2000, when Gladiator came out. I had just seen it with my friends, and one of them was dropping me off at my house after the show. 

We were standing in my driveway (it was a beautiful, star-filled night), and I said, "do you realize...that could be our friends, called up to fight in a war, somewhere across the globe?"

It was a sobering realization. We were almost all 18 (with the exception of Tom, who would have his birthday in August). Sure, we weren't going to fight the Barbarian Hordes in Germania, but it could happen. 

And a little more than a year later, when we were sophomores in college, it did. 
All of the guys I've mentioned above fought in the Iraq war, in some capacity. Some are still in service (Rob) and some are in law school now (Steve).  My friend Liz and her husband are doctors with the Navy, and they have a newborn son. 

The sacrifices they have made for us astound me on a daily basis.

Thank you. 

O Beautiful for spacious skies
For amber waves of grain
For purple mountain majesty
Above the fruited plain!
America, America
God shed His grace on thee!
And crown thy good with brotherhood 
From sea to shining sea!



O beautiful for heroes proved
 In liberating strife,
Who more than self their country loved,
And mercy more than life!
America! America! 
May God thy gold refine
Till all success be nobleness,
And ev'ry gain divine!

O Beautiful for patriot dream
That sees beyond the years
Thine alabaster cities gleam,
Undimmed by human tears!
America! America! God shed His grace on thee,
And crown thy good with brotherhood
From sea to shining sea!

Monday, November 10, 2008

The Simple Woman's Daybook




 


(with some editions from Elizabeth)

For MONDAY, November 10, 2008 (yes, I'm late this week!)

Outside my window...
The sky is a very pale blue, and all the leaves are gone. It's in the mid-40s. 

I am thinking...
about Christmas gift ideas.

I am thankful for...
those who defend our nation.

From the kitchen...
Brioche, since I get tomorrow off!

To live the liturgy...
Magnificat, daily Bible reading.

I am wearing...
a bright blue cashmere sweater; black pants; black socks; diamond studs. 

I am creating...
new L&A chapters.

I am going to breathe deeply ...
and enjoy the extra day off.

Bringing beauty to my home ...
Organizing my new bookshelf!

I am going...
to be productive. 

I am reading...
Truth and Tolerance (B XVI); The Kreutzer Sonata and Other Stories (Tolstoy), Bleak House (Dickens, which is really good, even if it is like 700 pages long!) (Yeah, OK list hasn't changed in awhile, but these are long!)

I am hoping...
for a good week.

I am hearing...
the Parade soundtrack (in my car)

Around the house...
dusting and tidying up the bathroom. 

One of my favorite things...
crisp fall days

A Few Plans For The Rest Of The Week:
Tuesday: Dinner w/ Anne and Lindsay!
Wednesday: choir
Thursday: ballet
Friday: Quantum of Solace!


Here is picture thought I am sharing...


Andrea and tom's wedding. From L-R: Molly (Tom's sister); Tiffany; me; Allison Snyder; Andrea; Ashley (Andrea's other sister, who is married); Lindsay Seders, and Lindsey, Andrea's cousin. 

Wednesday, October 01, 2008

St. Therese

It's my patron saint's feast day, so, if you haven't already, go read this. 
"My God, I choose all. I will not be a saint by halves." --St. Therese 

Monday, September 08, 2008

At home Daybook--September 8

(Totally stole this from Elizabeth)


***
Outside My Window ...is a beautiful day. The trees are still green but the air is cooler and the breeze is crisp, promising fall very soon.

***
Towards a daily rhythm ... learning to do what is important first and well, to have time for the fun things later.
***
I am thankful for ...my faith sharing group; the onset of fall; my friends; the work I did today.
***
From the kitchen ...
Greek Tuna pasta salad for dinner.

***
To live the liturgy...
Saying my rosary BEFORE bed, in honor of Mary's birthday. This way I won't fall asleep whilst I'm saying it (as I am prone to do).

***
I am wearing ... a blue jersey dress and a turquoise cardigan that hits at my waist. All blue for Mary. :)
***
I am creating ...my schedule for the week.
***
I am going to breathe deeply ...it's getting cooler this week, so fun fall clothes and activities.
***
Bringing beauty to my home ...cleaning and setting up the apartment for the onset of fall and winter. trying to obtain real order and not just organized chaos.
***
I am reading ... Truth and Tolerance, by BXVI; Night and Day, by Virginia Woolf, and The Golden Bowl, by Henry James
***
I am hoping ... that tonight's Parish Council meeting goes quickly and well (not necessarily in that order)
***
Around the house ... the kitchen table is still a disaster.

One of my favorite things ... talking politics with my faith sharing group. :)
***
A Few Plans For The Rest Of The Week: Parish Council tonight; Choir on W; Bryan's 23rd birthday (yikes!) and dinner at Scali's on Thursday; Tastefully Simple party on Friday.
***
Here is a picture thought I am sharing~

Friday, July 04, 2008

Happy Independence Day!

*my favorite parts in bold

IN CONGRESS, JULY 4, 1776
The unanimous Declaration of the thirteen united States of America
When in the Course of human events it becomes necessary for one people to dissolve the political bands which have connected them with another and to assume among the powers of the earth, the separate and equal station to which the Laws of Nature and of Nature's God entitle them, a decent respect to the opinions of mankind requires that they should declare the causes which impel them to the separation.

We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness. — That to secure these rights, Governments are instituted among Men, deriving their just powers from the consent of the governed, — That whenever any Form of Government becomes destructive of these ends, it is the Right of the People to alter or to abolish it, and to institute new Government, laying its foundation on such principles and organizing its powers in such form, as to them shall seem most likely to effect their Safety and Happiness. Prudence, indeed, will dictate that Governments long established should not be changed for light and transient causes; and accordingly all experience hath shewn that mankind are more disposed to suffer, while evils are sufferable than to right themselves by abolishing the forms to which they are accustomed. But when a long train of abuses and usurpations, pursuing invariably the same Object evinces a design to reduce them under absolute Despotism, it is their right, it is their duty, to throw off such Government, and to provide new Guards for their future security. — Such has been the patient sufferance of these Colonies; and such is now the necessity which constrains them to alter their former Systems of Government. The history of the present King of Great Britain is a history of repeated injuries and usurpations, all having in direct object the establishment of an absolute Tyranny over these States. To prove this, let Facts be submitted to a candid world.

He has refused his Assent to Laws, the most wholesome and necessary for the public good.

He has forbidden his Governors to pass Laws of immediate and pressing importance, unless suspended in their operation till his Assent should be obtained; and when so suspended, he has utterly neglected to attend to them.

He has refused to pass other Laws for the accommodation of large districts of people, unless those people would relinquish the right of Representation in the Legislature, a right inestimable to them and formidable to tyrants only.

He has called together legislative bodies at places unusual, uncomfortable, and distant from the depository of their Public Records, for the sole purpose of fatiguing them into compliance with his measures.

He has dissolved Representative Houses repeatedly, for opposing with manly firmness his invasions on the rights of the people.

He has refused for a long time, after such dissolutions, to cause others to be elected, whereby the Legislative Powers, incapable of Annihilation, have returned to the People at large for their exercise; the State remaining in the mean time exposed to all the dangers of invasion from without, and convulsions within.

He has endeavoured to prevent the population of these States; for that purpose obstructing the Laws for Naturalization of Foreigners; refusing to pass others to encourage their migrations hither, and raising the conditions of new Appropriations of Lands.

He has obstructed the Administration of Justice by refusing his Assent to Laws for establishing Judiciary Powers.

He has made Judges dependent on his Will alone for the tenure of their offices, and the amount and payment of their salaries.

He has erected a multitude of New Offices, and sent hither swarms of Officers to harass our people and eat out their substance.

He has kept among us, in times of peace, Standing Armies without the Consent of our legislatures.

He has affected to render the Military independent of and superior to the Civil Power.

He has combined with others to subject us to a jurisdiction foreign to our constitution, and unacknowledged by our laws; giving his Assent to their Acts of pretended Legislation:

For quartering large bodies of armed troops among us:

For protecting them, by a mock Trial from punishment for any Murders which they should commit on the Inhabitants of these States:

For cutting off our Trade with all parts of the world:

For imposing Taxes on us without our Consent:

For depriving us in many cases, of the benefit of Trial by Jury:

For transporting us beyond Seas to be tried for pretended offences:

For abolishing the free System of English Laws in a neighbouring Province, establishing therein an Arbitrary government, and enlarging its Boundaries so as to render it at once an example and fit instrument for introducing the same absolute rule into these Colonies

For taking away our Charters, abolishing our most valuable Laws and altering fundamentally the Forms of our Governments:

For suspending our own Legislatures, and declaring themselves invested with power to legislate for us in all cases whatsoever.

He has abdicated Government here, by declaring us out of his Protection and waging War against us.

He has plundered our seas, ravaged our coasts, burnt our towns, and destroyed the lives of our people.

He is at this time transporting large Armies of foreign Mercenaries to compleat the works of death, desolation, and tyranny, already begun with circumstances of Cruelty & Perfidy scarcely paralleled in the most barbarous ages, and totally unworthy the Head of a civilized nation.

He has constrained our fellow Citizens taken Captive on the high Seas to bear Arms against their Country, to become the executioners of their friends and Brethren, or to fall themselves by their Hands.

He has excited domestic insurrections amongst us, and has endeavoured to bring on the inhabitants of our frontiers, the merciless Indian Savages whose known rule of warfare, is an undistinguished destruction of all ages, sexes and conditions.

In every stage of these Oppressions We have Petitioned for Redress in the most humble terms: Our repeated Petitions have been answered only by repeated injury. A Prince, whose character is thus marked by every act which may define a Tyrant, is unfit to be the ruler of a free people.

Nor have We been wanting in attentions to our British brethren. We have warned them from time to time of attempts by their legislature to extend an unwarrantable jurisdiction over us. We have reminded them of the circumstances of our emigration and settlement here. We have appealed to their native justice and magnanimity, and we have conjured them by the ties of our common kindred to disavow these usurpations, which would inevitably interrupt our connections and correspondence. They too have been deaf to the voice of justice and of consanguinity. We must, therefore, acquiesce in the necessity, which denounces our Separation, and hold them, as we hold the rest of mankind, Enemies in War, in Peace Friends.

We, therefore, the Representatives of the united States of America, in General Congress, Assembled, appealing to the Supreme Judge of the world for the rectitude of our intentions, do, in the Name, and by Authority of the good People of these Colonies, solemnly publish and declare, That these united Colonies are, and of Right ought to be Free and Independent States, that they are Absolved from all Allegiance to the British Crown, and that all political connection between them and the State of Great Britain, is and ought to be totally dissolved; and that as Free and Independent States, they have full Power to levy War, conclude Peace, contract Alliances, establish Commerce, and to do all other Acts and Things which Independent States may of right do. — And for the support of this Declaration, with a firm reliance on the protection of Divine Providence, we mutually pledge to each other our Lives, our Fortunes, and our sacred Honor.

Tuesday, April 29, 2008

Why I blog II

For girls like Jordan: (emphasis mine)

Local teen waits for lung transplant

Brenda Tollett Associate Editor

Ada— As students at Ada High School prepare for summer break, 17-year-old Jordan Lee Ulrich waits for a lung transplant.
The Ada teen was was born with Cystic Fibrosis and has spent much of her young life in hospitals.
“Not a single year has gone by when she didn’t have to be hospitalized,” said Lesa Ulrich, Jordan’s mother. “In 2007 alone, Jordan was admitted to Dallas Children’s Medical Center in February and stayed until April. She was there again in July. In September she went for her transplant evaluation at St. Louis Children’s Hospital in St. Louis, Mo. Shortly after returning to Oklahoma she had to be hospitalized again in Dallas for all of October, November and most of December.”
Now she waits at St. Louis Children’s Hospital for a new lung to become available.
Until late 2007, Lesa Ulrich said her daughter had done surprisingly well. She began having trouble controlling pain in her lungs and couldn’t breath without an oxygen machine.
“On Christmas morning, she wanted to come downstairs to open presents,” Lesa Ulrich said. However, the teen was to weak to walk. Her father, Dr. John Ulrich, carried her down the stairs but within 10 minutes she exausted.
Her routine follow-up appointment with the St. Louis transplant team in March 2008 turned into a three-week hospital stay, leaving the family totally unprepared. “Upon arriving at her appointment, Jordan’s pulmonary function test scores were very bad,” said her mother. “We had actually already checked out of our motel and were on our way home when St. Louis (transplant team) called and asked us to return.”
Hospital officials, according to Lesa Ulrich, were concerned her daughter wasn’t well enough to return to Dallas. Using four of the strongest IV antibiotics, Jordan Ulrich was tested again one week later. Her scores were even lower than before and have continued to drop.
Fundraising for Jordan Ulrich’s transplant is required by the hosptial in St. Louis, according to Lesa Ulrich. In addition to costs associated with the transplant, funds are also needed for transportation, lodging, food, and medical supplies. A transplant fund has been established in Jordan Ulrich’s name at East Central Credit Union, 801 E. Main, Ada.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. According to the Cystic Fibrosis Foundation, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
When the Cystic Fibrosis Foundation was established in 1955, most children did not live to attend elementary school. Today, the predicted median age of survival is 37 years.
People with CF can have a variety of symptoms, including:
✔ very salty-tasting skin;
✔ persistent coughing, at times with phlegm;
✔ frequent lung infections;
✔ wheezing or shortness of breath;
✔ poor growth/weight gain in spite of a good appetite; and
✔ frequent greasy, bulky stools or difficulty in bowel movements.



You know the part that got me? The part about being able to enjoy Christmas for only 10 minutes.

I love Christmas, as anyone who knows me even slightly will tell you. It's such a major event for me. I go hog wild with cards, presents, and church choir stuff. It really is "the most wonderful time of the year." If I could only celebrate for ten minutes....I can't imagine. That's always been a "normal" day for us. I have never (thankfully!) spent it at The Resort.

One year I was on home TPN and lipids and Mom insisted I keep on the "feed" while we opened gifts. I was not happy. But I have always enjoyed Christmas day and our Christmas festivities in general. OK, yes, once I was a Branden's Christmas party doped up on phenergan, but I don't think anyone noticed. :)

Pray that Jordan has a better Christmas this year. She deserves it.

Tuesday, April 08, 2008

Bon anniversaire pour moi!

OK, so the birthday isn't until tomorrow, but my book haul is AMAZING, so I thought I'd share!

Cindy & Co. gave me a Half Price books gift card, so I went and bought:
--The Pilgrim's Progress
--Robinson Crusoe
--Carmen and other stories
--Ben-Hur
--Ethan Frome
--Night and Day
--Jacob's Room
--Encore Provence


Mom and Dad bought me the following at Catholica on Saturday:
--B XVI, Way of the Cross,
--Ordinary Work, Extraordinary Grace, Scott Hahn
--Christ Our Joy: The theological vision of Pope Benedict SVI
--The Way of Perfection, St. Teresa of Avila



And then, tonight, I used my B&N giftcard to get:
--Shakespeare, by Peter Akroyd (I've been wanting to read this for years)
--The companion book to The Chronicles of Narnia: Prince Caspian


Whew....lots of reading!

Sunday, March 30, 2008

Quick updates

OK so I thought I had the computer glitch fixed, and then when I went to write the massive book post, not so much!
So here are some quick notes:

Books I've read lately (with star ratings):

--Anita Diamant, The Red Tent: ****
--Jacquelyn Mitchard, The Breakdown Lane: ****
--Tracy Cheavlier, Burning Bright: ***

Reading now:

--Portrait of a Lady
--Notre-Dame de Paris

Watching:
--Michael Clayton: ****
--Enchanted! Whoohoo! ****
--The Tudors: Season 1: Awesome possum--**** so far. OK, yes, there are mucho historical liberties, but it is so much fun to watch, with excellent acting.
--Disney: Snow White, The Hunchback of Notre Dame

Jane stuff: Sense and Sensibility starts tonight on PBS--USA Today gave it four stars. Go watch it!

Easter was wonderful--great music, great time with family. Pics up soon, if the computer cooperates!

Today I sang at a LOOP Donor Family Recognition event. It was the first time I had ever sung and accompanied myself (via piano) so I was a little nervous. I sang Sarah McLachlan's "I Will Remember You", which went over well, and, Thank God, it was a simple arrangement. Again, if I get pics, I'll put them up (obviously I didn't take them when I was singing!)

Oh, and just a minor thing--Tricia may have lungs! Ha ha! YAY!

Thursday, March 13, 2008

Beads

I was at the "resort" today, and noticed a pamphlet for a new program Children's is starting, called "Stinger's Bravery Beads", which is named after the Blue Jackets' mascot and is funded through the Jacket's Foundation, which helps fight pediatric cancer.
As I looked at it, I though, "wow, this is great! I would love this!" Then I noticed something--it's for cancer kids only.

Why is that?

I looked at the list of things that you could earn beads for. The list is long, but here's what I've done:

--Birthdays (since diagnosis)
--BM Transplant (I'd replace with lung, but you say tomato)
--Clinic Visit
--Dressing change (let's see...where do we start? PICCS? Ports? The dressings from the burn post-surgery?)
--ER visits (ha! Ha! I'd have half a million)
--Fever
--Holidays (since diagnosis? In hospital? Either way, we'd have this covered)
--Hospital Admission (no comment)
--Line In (PICCS? Peripherals? Port access? Does this count ones that went bad, too?)
--Line Out
--Major Surgery (the transplant, the CI)
--Medical Exam (oh, the thousands upon thousands)
--New Diagnosis
--Off TPN (yup, done that! Several times!)
--OT/PT
--PCA/Morphine (ahhh, the Lovely PCA pump!!)
--Pokes (millions. I kid you not.)
--Scans/Tests (MRI, Bone scans, VQ Scans)
--School (in house)--did that with my first diagnosis
--School re-entry (many, many times)
--Spirituality (a lot! Thanks Fr. Mark!)
--Terrible, Horrible, Very Bad Day! (um, lots)
--TPN
--Transfer to PICU (one, or two, if you count post-tx)
--Transfusion
--Tube insertion (Chest, Catheter)
--Very Good Day (A few of these)

But there's one on the cancer list that you will NEVER see on the CF list:

--End of treatment

Because CF treatment only ends when youdo. There's no remission, no recovery, no "Five years and we think you're cured" status. Sure, I don't do Chest PT anymore. Other things have taken its place. But that doesn't mean that it's over.

I think we deserve some beads.

Thursday, February 14, 2008

Happy Valentine's Day!

OK, so even though I have no love life to speak of, I did get Becoming Jane from my parents for V-Day. So that makes me happy. :)

Friday, January 25, 2008

The iPod meme

Put you iPod on shuffle and write down the first 10 songs that come up:

1) "My White Knight" from The Music Man (Rebecca Luker)
2) "Crusin'" from the movie Duets
3) "Losing My Religion" REM
4) "Mary's Boy Child" Charlotte Church
5) "I'm All Alone" from Spamalot (Tim Curry and Michael McGrath)
6) "On This Night of A Thousand Stars" from Evita (Madonna and Antonio Banderas)
7) "Dear Old Shiz" from Wicked
8) "He Was Despised" from The Messiah
9) "Traditions of Christmas", Mannheim Steamroller (A Fresh Aire Christmas)
10) "Sun and Moon" from Miss Saigon (Lea Salonga and Simon Bowman)

Now, write the meaning/associations (if any) these songs have for you:

1) The first musical we did in high school. And the lyrics fit what I want in a man so perfectly:
My White Knight/ Not a Lancelot/ Nor an angel with wings/ Just someone to love me/ Who is not ashamed of a few nice things/ My white knight/ What my heart would say if it only knew how/ Please, dear Venus/ Show me now./ All I want is a plain man/ All I want is an honest man/ A quiet man, a gentleman/ A straightforwrad and honest man to sit with me/ in a cottage/ somewhere in the state of Iowa/ And I would like him to be/ More interested in me/ than he is in himself/ and more interested in us/ than in me./ And if occasionally he'd ponder/ what makes Shakespeare and Beethoven great/ him I could love till I die./ Him I could love till I die./ My white knight/ not a Lancelot/ nor an angel with wings/ Just someone to love me/ who is not ashamed of a few nice things./ My white knight/ Let me walk with him while the others ride by/ Walk and love him/ Till I die/ Till I die.


2) This is a great driving song. I love to play this one in the summer with my moonroof open. :)

3) LOVE this song. My college boyfriend and I would play it all the time. Still love it.

4)At the 8:00 Christmas Vigil Mass at my parish, the cantor always sings this piece before the Mass. Reminds me of being a kid again.

5)This is just too funny. Saw this musical with Cindy and cracked up the whole time!

6)I went through a massive "Evita" phase where I memorized both discs and got all the lyrics down. This is one of my favorites, when Eva is trying to convince one of her lovers to take her to Buenos Aires.

7) Wicked is my second favorite musical (it is very close on the heels of Phantom), and this is the song that opens the story after the scene-setting "No One Mourns the Wicked." I love the choral harmonies. Reminds me of college and see this with my best friends during my first transplant anniversary trip to Chicago in'06.

8) This is one of the Alto arias from Part II of The Messiah. I absolutely love it; it quotes some of my favorite passages from Isaiah 51-53. It's gorgeous.

9) Reminds me of driving to Midnight Mass with my family, the air crisp and cold and the stars shimmering. We always listen to this CD on the way to Mass, and now I do the same thing, since I drive separately to prepare for the choral pieces ahead of time.

10) I got this CD for my high school graduation and immediately began to memorize it. Kim is a great Alto/Mezzo (although much more Alto) role and I fell in love with the score quickly. This is a wonderful duet from Act I, after Chris and Kim realize they are in love.

I tag--anyone with an iPod. :) So I better see lots of responses!

Tuesday, January 01, 2008

Happy New Year!

I don't normally make resolutions, so this is about as close as I get.

To add to that:
--Exercise will happen. At LEAST 3 times a week. (I think. I hope.)
--I will finish L&A (to read it thus far, go here)